I’m Katy, military wife and full-time working momma to a sweet boy and 2 little girls. Our oldest daughter (currently 5 years old) has a rare genetic condition called Pyruvate Dehydrogenase Deficiency. I plan to use this platform as a form of expression; to share my story and to free the words that I’ve been holding close for far too long. Some things are just better written than said.
When I first found out that we were going to have a child with special needs, I scoured the internet for someone like me…another mom going through the same thing. I was in desperate search of hope. My hope now is that our story reaches a broken mother who is currently where I was 5 years ago, and for her to know that she is not alone.
"No cure" is not an answer.
If you'd like to help fund PDCD research for a cure, please consider donating to Hope for PDCD. The foundation is parent powered and not a penny goes to overhead or salaries. Our children deserve the best and that's what we'll continue to fight for everyday.
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